Hold on to your hats my friends. It may actually be happening, and all of a sudden I'm not sure I want it to happen. I got a call today from someone at Nuclear Medicine and we discussed the precautions and scheduling. Scary, Scary. Could be as soon as next week.
The issue is this the very nice man I spoke with said that 99% of the time the thyroid tissue is not totally removed and has moved elsewhere. Usually behind the sternum. The radiologist generally likes to just go ahead and do the full ablation because of that. My endo on the other hand, likes to do the more cautious approach, the three day "mini scan" and then the full ablation if necessary. So we would be looking at just a five day commitment or a whopping 8 days.
The catch? I'm going to have to quarantine myself. So do I want to do it for five days or eight days? I wasn't told that I needed to do it, I was just told I would have to take precautions. That small children are most susceptible to the Iodine and it can in turn damage their glands. The Iodine can work itself out through sweat, tears, saliva, etc. Would I want to take that chance and possibly expose my children. I definitely wouldn't be able to share a bed with DH due to my horrendous night sweats of late, not sure if that's post pregnancy hormone related or thyroid related. Aside from it being gross it would obviously be an issue of an exposure for DH. The best course would be the five day full ablation, I would rather just get it out of the way rather risk the extended time away from my family.
I am almost positive that there is still thyroid tissue or else I wouldn't have so much difficulties with getting my levels to where they needed to be way back at the beginning of this. There would have to be tissue, I know she suspects it as well. So why prolong it?
So not only am I looking at five days from work, but I am also getting a five day vacation out of the deal. I suppose on the bright side, I can sleep, watch TV, sleep some more and get caught up on some reading. Or start reading for the first time in three years. Oh and did I mention that I would get some sleep? The though of being away from my kiddos though for that long is breaking my heart.
More news as I get it.
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2 comments:
the five day sounds like a WIN! i'm so glad you are finally getting to move forward with all of this... hopefully it will all be behind you in no time.
you are always welcome to hide out at my house! lol i remember the day well when my mom came home still leaking radiation and we had to stay at least 5 feet away at all times.
moving forward, and onward, and upward!
isn't it crazy how something can drag on, and then one day... you are talking about scheduling something like this for NEXT WEEK! wow.
hey i have been meaning to tell you - there is a girl from my local LA nestie board who recently has gone through treatment for the same kind of cancer as you - her screen name is shellybellmw - here is her myspace,
www.myspace.com/shellybellmw not sure if she has a blog or not... i am not close with her or anything, but have followed her story a little bit - she has a little bit posted on her myspace about the cancer, she may be someone you want to reach out to. i know she did the radiation thing and was in quarantine away from her little girl who is probably close to evies age.
xoxo
hang in there girlie!
hugs and prayers from the westside!
kari
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